At Children’s Colorado, we believe in information transparency. You deserve to see your child’s health information as soon as it is ready. We believe this builds trust and better relationships between patients, families and their healthcare team.
What is the 21st Century Cures Act?
Since 1970, patients and families have had the right to ask for and view their entire health record. The 21st Century Cures Act was passed in 2016 and adds new rules for sharing electronic health information. These new rules make health information more easily available to patients and families.
To meet these requirements, we will release health information as soon as it is final. These changes apply to most health information. This means that test results will be sent to you at the same time your doctor gets them. You may also see other health information that was not available before. For example, all notes from your care team members will be released as soon as they are final.
These changes start on April 5, 2021.
What does this mean for you and your family?
You will get your child’s test results as soon as they are available.
- Because we care for many patients each day, you may see some results even before we do.
- We look at every result and will talk to you about relevant or concerning results. Some lab tests come back that may not end up being clinically important. Others may be hard to interpret and need to be reviewed in the context of other test results and your child’s unique situation.
- We will reach out to you by phone, or we will schedule a follow-up visit to talk with you about results that concern us.
- If your results are not concerning, we will mail a letter or send an online message about the results.
- For critical results, we will reach out to you as soon as possible.
- If there are results that show a serious finding, like “cancer” or “fracture,” we will reach out to you quickly to help you take the next steps.
- You are also able to talk to us through MyChart, or by phone, if you have any questions or concerns.
You can choose when you want to look at test results.
- Some people want to look at the test results right away. If it is hard to understand or they have a serious finding, they feel confident searching online for answers to their questions, or asking friends or family, until there is time to talk about it with their doctor.
- Because of possible “bad news,” some people will wait a day or two for their doctor to talk to them (online message, phone call, mailed letter) with any concerning findings before looking at the result.
- When possible, you can plan for your routine tests to be done before an appointment so you can review the results together with your doctor during the visit.
- When we can, we plan on talking about the possible results ahead of time, so you know what to expect.
- You can tell your doctor if you do not want a test result released until they are able to review the result and call you. They can change the setting to not release the result automatically.
Frequently asked questions
What if the information in the record is wrong?
Patients or guardians do have the right to update wrong information in their child’s health record. If you see something that is not right, please call the Health Information Management team at 720-777-6343.
What if I don’t see information that I expect would be there?
Please reach out to your doctor or care team. There are times that your doctor can choose to hold back a specific note, result or problem if certain types of criteria are met (such as, the risk of bodily harm or a privacy concern).
How does this rule impact teenager confidentiality?
Under Colorado law, minors can seek and consent to their own treatment for some types of services. In these cases, this information is confidential and will not be shared with the parent or guardian. Under the 21st Century Cures Act, not sharing this information is allowed. If you have any questions, please ask your healthcare team.