Eosinophilic Esophagitis (EoE) Resources for Families

A diagnosis of eosinophilic esophagitis, or EoE, may feel overwhelming. Suddenly, your family must figure out how to avoid foods that trigger your child’s condition and cause symptoms. That often includes things like dairy, eggs, wheat and peanuts, which are commonly used when cooking meals.

But living with eosinophilic esophagitis can get easier over time. At Children’s Hospital Colorado’s Gastrointestinal Eosinophilic Diseases Program, our allergists help identify foods a child with EoE should avoid, and then our registered dietitians provide guidance on how to structure a balanced diet that excludes those foods.

Beyond recommending an EoE diet, our Program also offers education and support for your child and your entire family. From general tips to EoE awareness organizations, we’ve complied some additional information that may help.

Multidisciplinary care for EoE

Because EoE can affect many aspects of a child’s life, at Children's Colorado experts from multiple specialties work together to address your child’s specific health needs. Learn about the types of specialists you’ll meet and the resources they’ll provide to ensure the best care for your child and your whole family:

• Allergist: focuses on identifying foods that trigger symptoms and provides care for other allergic diseases
• Gastroenterologist: identifies and treats esophageal inflammation and complications including esophageal strictures
• Registered dietitian: evaluates a patient’s current dietary preferences and creates a therapeutic and feasible nutrition plan
• Feeding specialist: evaluates a patient’s current eating habits and family dynamics and works to create a treatment plan that is best for both short- and long-term healthy eating
• Psychologist: works with a patient and their family to learn healthy ways to cope with living with eosinophilic esophagitis

EoE awareness and support organizations

When your child or teen has a serious condition like EoE, it’s important to seek information from credible resources. Visit the following websites for additional information and support for living with EoE:

• American Partnership for Eosinophilic Disorders: A patient advocacy group dedicated to improving the lives of people living with eosinophilic disorders. Visit their website for EoE resources for patients of all ages, research studies for EoE and support groups, including EOS Connections, an online community.
• American Academy of Allergy, Asthma and Immunology: Publisher of two medical journals, The Journal of Allergy and Clinical Immunology and The Journal of Allergy and Clinical Immunology: In Practice to advance the specialty of allergy and immunology. Visit this website to access summaries of recent EoE research.
• Asthma and Allergy Foundation of America: A nonprofit organization dedicated to saving lives and reducing the burden of disease for people with asthma and allergies through support, advocacy, education and research. Their resources include Kids With Food Allergies, a website featuring educational materials, recipes and referrals to local support groups for children and teens living with EoE and other food allergies.
• Campaign Urging Research for Eosinophilic Disorders: A nonprofit foundation dedicated to helping patients with eosinophilic gastrointestinal disorders, or EGIDs, including EoE. In addition to raising awareness about EGIDs, the organization provides grants to fund research and clinical trials to find treatments for these patients.
• Consortium of Eosinophilic Gastrointestinal Disease Researchers: As a division of the Rare Diseases Clinical Research Network in the National Institutes of Health, this organization works to improve the lives of individuals with EGIDs by coordinating collaboration between scientists, health care providers, patients and professional organizations.
• Food Allergy Research and Education: An organization working to improve quality of life and health of individuals with food allergies and to provide hope through new treatments. Visit this website for food allergy educational tools and resources, to find a support group and to learn about U.S. laws and regulations regarding food allergies.

EoE books

For kids

• Eating Isn’t Always Easy: Ben’s story about his Eosinophilic Esophagitis, by Nancy S. Rotter, PhD, and Qian Yuan, MD, PhD
• Macaroni Isn’t the Same Without Cheese: Danny’s story about his Eosinophilic Esophagitis, by Nancy S. Rotter, PhD, and Qian Yuan, MD, PhD

For teens and parents

• My Real-Word Guide for Eosinophilic Esophagitis, by Danielle Travis
• Food Allergies: A Complete Guide for Eating when Your Life Depends on It, by Scott Sicherer
• Food Allergies for Dummies, by Robert A. Wood and Joe Kraynak
• Food Allergy Survival Guide: Surviving and Thriving with Food Allergies and Sensitivities, by Vesanto Melina, Dina Aronson and Jo Stepaniak
• The Parents’ Guide to Food Allergies: Clear and Complete Advice from the Experts on Raising Your Food-Allergic Child, by Marianne Barber

Child nutrition books for parents

• Child of Mine: Feeding with Love and Good Sense, by Ellen Satter
• Fearless Eating: How to Raise Healthy Eaters from High Chair to High School, by Jill Castle and Maryann Jacobsen

Learn more about our comprehensive approach to EoE treatment.

Contact us

We accept patients from around the world. To get in touch please call 720-777-7457.